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Celine Dion Vows to Perform Again, Battling Stiff Person Syndrome

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Discover Celine Dion's unwavering resolve to perform despite battling stiff person syndrome. Learn about her journey, recent surprise Grammy appearance, and upcoming documentary.


Celine Dion Vows to Return to Stage Despite Rare Neurological Disease

Celine Dion has expressed a relentless determination to continue performing, even in the face of the debilitating effects of her rare neurological disease, stiff person syndrome. In a revealing interview with NBC that aired Tuesday evening, the 56-year-old icon stated her resolve to get back on stage. 'I'm going to get back on stage, even if I have to crawl. Even if I have to speak with my hands, I will. I will,' said the star with unyielding conviction.

'Stiff person syndrome' is a progressive autoimmune disease that causes muscle stiffness primarily in the torso, arms, and legs, and can trigger severe spasms. Dion openly discussed the physical manifestations of the illness during the interview, noting that the symptoms often create a sensation 'like someone is strangling you.' This severe discomfort has even led to broken ribs on occasion.

The impact of the disease has been so severe that Dion was forced to cancel a series of shows planned for 2023 and 2024. However, her love for the stage and her fans remains undiminished. 'It's because I want it and I miss it,' she shared, emphasizing that her desire to perform comes from the heart, rather than out of necessity.

Earlier this year, despite her health challenges, Dion made a surprise appearance at the Grammy Awards and presented the album of the year award to Taylor Swift. This year also marks the release of her documentary, 'I Am: Céline Dion,' which is set to debut on Amazon Prime Video on June 25.

Celine Dion's illustrious career spans decades, having sold over 250 million albums worldwide. Her latest Courage World Tour was interrupted by the Covid pandemic, but her spirit of resilience remains as she works to manage her symptoms and make a comeback. According to the US National Institutes of Health, stiff person syndrome affects twice as many women as men, and while there is no cure, treatment can help control the symptoms.

  • The singer's openness about her condition has brought attention to the challenges of living with stiff person syndrome, raising awareness of this rare disease. Dion's candid discussions about her symptoms and the impact on her professional life have been a source of inspiration for many.
  • 'I Am: Céline Dion' promises an intimate look into her life and career, exploring both her triumphs and struggles. Fans eagerly await the documentary, which is expected to provide a deeper understanding of her journey and her unwavering spirit.
Clam Reports
Refs: | Le Figaro | Le Parisien |

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